Home Care Guide

Palliative care at home: what is available and how to access it

Most people want to spend their final months at home, surrounded by family. Government-funded care can make this possible โ€” with the right support in place.

Services available for palliative care at home

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Pain and symptom management

Nursing visits to manage pain, nausea, breathlessness and other symptoms at home. Coordination with the palliative care team and GP.

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Personal care

Help with showering, dressing, and personal hygiene โ€” delivered with dignity and sensitivity to changing needs.

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Emotional and psychological support

Counselling and support for both the person receiving care and family members navigating a difficult time.

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Family carer support

Practical help and education for family carers. Respite visits so carers can rest. Support in the weeks following bereavement.

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Allied health

Physiotherapy for comfort and mobility, occupational therapy for home safety, and speech pathology for eating and swallowing difficulties.

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Care coordination

A care coordinator to liaise between the GP, specialist palliative care team, hospital, and home care services โ€” reducing family burden.

Urgent? How to get help quickly

If care is needed urgently for someone with a terminal illness, there is an expedited pathway through My Aged Care. Contact them and explain the situation is palliative or end-of-life.

My Aged Care โ€” 1800 200 422

Request an urgent assessment โ€” explain it is palliative

Your GP โ€” Your regular GP

Ask for a referral to the local specialist palliative care team

WithSally โ€” withsally.com.au/get

We can help coordinate provider matching while you navigate the system

Common questions

What is palliative care at home?+
Palliative care at home means receiving end-of-life care in your own home rather than in a hospital or residential facility. It focuses on comfort, quality of life, and dignity rather than curative treatment. Services include pain management, nursing, personal care, emotional support, and family carer assistance.
Can a home care package pay for palliative care at home?+
Yes. A home care package (Levels 1-8 under the Support at Home program) can fund palliative care services at home, including nursing visits for symptom management, personal care, allied health, care coordination, and carer support. Higher package levels (5-8) provide more capacity for intensive end-of-life care needs.
Who provides palliative care at home in Australia?+
Palliative care at home is delivered by a combination of services: specialist palliative care teams (through public hospitals and hospices), general practice, community nurses, and home care package providers. Most major cities have dedicated palliative care teams that can visit at home or consult over the phone.
How do I arrange palliative care at home?+
Start by talking to your GP or hospital palliative care team. For government-funded home care support, contact My Aged Care on 1800 200 422 โ€” there is an expedited assessment pathway for people with terminal illness. Tell them the situation is urgent; palliative assessments are often prioritised.
Can someone receive palliative care at home without a home care package?+
Yes. Specialist palliative care services through the public health system are available regardless of whether you have a home care package. However, a home care package supplements this with additional personal care, domestic assistance, and carer support that the health system does not typically provide.
What happens if care needs become too complex to manage at home?+
If symptoms become difficult to control at home, a short inpatient admission to a hospice or hospital may be needed. This is not permanent โ€” many people return home after symptom stabilisation. Your palliative care team and Support at Home provider should have a plan for these transitions so they happen smoothly.

How the Support at Home program funds palliative care

Home care packages (Levels 1โ€“8 under the Support at Home program) can fund palliative care services at home. Higher levels (5โ€“8) provide $64,754โ€“$78,106 per year (2025โ€“26 rates โ€” Source: Australian Government Department of Health and Aged Care), giving families the budget for intensive end-of-life care.

What your package budget can pay for

โœ“Nursing visits for pain and symptom management
โœ“Pain medication management and coordination with GP
โœ“Personal care (showering, dressing, hygiene)
โœ“Allied health โ€” physiotherapy and occupational therapy
โœ“Social work and counselling support
โœ“Carer support hours and respite for family
โœ“Home modifications for comfort and safety
โœ“Equipment hire โ€” hospital bed, wheelchair, pressure mattress

Palliative assessments are prioritised. When contacting My Aged Care (1800 200 422), tell them the situation is urgent and palliative. An expedited assessment pathway exists for people with terminal illness โ€” do not wait for the standard queue.

~70%

of Australians prefer to die at home

Source: Palliative Care Australia

Nov 2025

Support at Home program launched

Replacing the previous HCP system

Expedited

ACAT pathway for terminal illness

Contact My Aged Care urgently

Specialist vs generalist palliative care providers

Most Support at Home providers can deliver palliative care services โ€” but expertise varies significantly. Specialist palliative care teams (through public hospitals and hospices) focus on symptom management and operate separately from home care packages. Both work best when they work together.

Questions to ask any home care provider

Before signing a service agreement, ask these directly:

โœ“Do you have staff specifically trained in palliative care?
โœ“Can you provide 24/7 on-call nursing support?
โœ“How do you communicate with the hospital palliative care team and GP?
โœ“What happens in a crisis at 2am โ€” who do we call?
โœ“Do you have experience with end-of-life care planning?
โœ“Can you increase service frequency quickly if needs escalate?

Advance care planning

Advance care planning documents what a person wants if they can no longer speak for themselves. It removes uncertainty and reduces pressure on family members at the hardest time. A Support at Home provider can work alongside advance care planning โ€” the two complement each other.

Advance Care Directive

A legally binding document (in most states) that records a person's wishes about medical treatment and end-of-life care. Must be completed while the person has decision-making capacity.

Enduring Power of Attorney

Appoints someone to make financial and legal decisions on behalf of a person if they lose capacity. Separate from medical decisions.

Enduring Power of Guardianship

Appoints someone to make personal and lifestyle decisions โ€” including medical treatment decisions โ€” if the person loses capacity. Laws vary by state and territory.

Free support: Advance Care Planning Australia offers free guidance on completing advance care planning documents. Call 1300 208 582. Interpreting services available.

We can help you navigate this

WithSally helps families find providers experienced in end-of-life and palliative home care. Gentle, independent guidance โ€” at no cost to families.

Get guidance โ€” free
General information only. Not medical or clinical advice. For urgent situations contact your GP or call My Aged Care on 1800 200 422. Palliative Care Australia: 1800 660 055. WithSally is independent and not affiliated with the Australian Government.